Baby Steps

I'm having to remind myself that progress with Isaac will come in baby steps. After the big leap in communication he took on Thursday (smiling, talking and signing), I think we all expected an equally big leap yesterday. However, Isaac has been very quiet - not signing and only speaking once or twice. He is still responsive to us though, and smiles a lot with his new, post-sedation, quirky grin. It's quite cute, but very different than the smile he used to have!

Isaac is still not able to sit up on his own, but is doing much better at holding his head up, and moves his arms around quite a lot. There are less and less tremors, and he didn't roll his eyes back in his head once yesterday (thank goodness... that was pretty creepy!). He hasn't needed oxygen in over 24 hours, and has also moved on to bolus feeding. He still gets fed through a nasalgastric tube, but instead of there being a continuous flow of food into his stomach, they have started doing a larger amount over a short period of time, every three hours. This is to get his stomach ready for regular meal times. This morning he received his last weaning dose of Ativan, and morphine will be finished sometime tomorrow. It will be interesting to see how he changes once those drugs are finally out of his system!

Yesterday a physiotherapist came to visit, and gave us some bubbles to use as therapy. The goal is to get him reaching for the bubbles... I think he did quite well!

I love how he seems to be imitating Russell!

We got in some good cuddle time too... also officially part of his therapy :).